EEPD | EEPDtalk | EEPDwiki

Rupert Fawdry, Founding Editor

Helga Perry, General Editor of eepd.info and Administrator of EEPDtalk and EEPDwiki

Assistant to Founding Editor, Irina Kullikova

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Latest update: 4th May 2012 
 
WIKI version of Vol. 4. Data Resource Document continues to grow fast.

Please note that the "Copyright Dr.Rupert Fawdry. All rights reserved" is no longer true. As soon as possible, this obsolete wording will be replaced everywhere in the EEPD. All text created by the editors of the EEPD, especially the many discussion documents, are now available for quotation anywhere else under the following Creative Commons Licence:

EEPD: The Electronic Encyclopaedia of Perinatal Data founded by Rupert Fawdry FRCS(Ed) FRCOG is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 3.0 Unported License.
Permissions beyond the scope of this license may be available at http://eepd.org.uk/?page_id=56

 

Welcome to the

continually evolving EEPD

First "A crucial IT question?"

"Which is the only significant group of people 

in receipt of health care in Britain,

who have full inter-operative medical records?

 

30 years after the introduction of microcomputers, 

there is still only one major group

who have a master copy of the full record of their care

a master copy which can easily be read, added to and corrected by anyone 

with any problem areas fully covered and important items clearly identified:

not just by all the doctors, midwives, physiotherapists, dietitians

and even by the patient?"

The answer is:

"All women in the UK who are in receipt of antenatal care"

for it is only they who, starting in the mid 1980s, have been in personal posession of the crucial mastercopy of their record, in the form of the hand-held Pregnancy Health Record,

This is now a comprehensive record not only of the past medical, surgical, maternity and medications history but the full results of all blood tests, scans and in most places all that has been recorded by doctors and midwives at the time of any admissions or re-admissions.

It remains, and owing to the cost and difficulty in funding the writing and revising of thousands of lines of rigid sofware code, is likely to remain, impossible for any electronic record anywhere in the world to compete with such flexibility and general accessibility

"Paper is Dead: Long live Paper"

Once this has been accepted, two recently written discussussion documents point the way by which paper casenotes and electronic patient database records can be integrated in exciting new ways. Two crucial papers still in draft form are currenly headed a). "Chips & Paper (and Sticky Labels): A Practical Blueprint for the Future of Materity IT" and b) "A bid for funding the development of a "totally cost free to the user" App - (provisionally called the PAMApp (Programed Assistant for Maternity Care) for use by any woman who is willing, prior to her initial pregnancy assessment appointment, to use her smart phone or tablet to reduce the time spent by midwives filling in her hand-held paper PHR.

Both these initiatives are based on the work originally done on this website and now being taken forward on the associated websites: i) http://eepdtalk.org.uk  for the text of the two discussion documents mentioned above while ii) http://eepdwiki.org.uk provides an opportunity to develop the highest quality sets of maternity questions, all allowable answers and a help text for each queston, together with, in time translations of these into all major languages.  Your help with this is needed. 

 

What is the EEPD?

Please read Introduction to the EEPD, especially "What the EEPD is" and the 12-point Summary (on EEPDtalk).

The EEPD is a long-term voluntary generic initiative by clinicians to link together all that is needed for an open-source, joined-up approach to improving shared Electronic and Paper IT Systems for Hospital/Community Maternity and Neonatal Care (in fact, exactly what was needed in 1990 when providing the clinical input for the creation of the best-selling Protos/iSoft/Evolution/Lorenzo Maternity IT system). 

 

The EEPD is entirely supported by voluntary contributions (99% so far by RF) and has no connection whatsoever with any commercial company - or, so far, with any other organisation. 

 Helga Perry (General Editor) and Rupert Fawdry (Founding Editor), July 2011

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A Template for all shared-care specialities?

 

The Essential Bedrock Foundation and Template

 

for all shared

 

Community & Hospital IT systems

 

  

Analysable and linkable Electronic Patient Records (EPRs) will only attain their true potential for improving the quality of patient care and reducing the risk of human error without excessive data re-entry overload, when, in each speciality and sub-speciality - following intense, open, web-based discussions by clinicians - their detailed, logically and chronologically-arranged, flow-patterned INPUT questions and the full range of all allowable answer-options - [always including "free text" whenever needed e.g. “Unknown (free text)” and “Other (free text)”] - are, by stages, using the best possible wording, taking account of as many interested parties as possible, individual question by individual question, internationally standardised. (Like our classification of organisms, diseases and operations, but far more complex)

Housing may be to provide Shelter; but always Foundation first, Roof afterwards. 

So, standardise Primary (Individual Care) Data First; defining Secondary (Management/Analysis) Data comes later.

 

Such specifications will only become universally standardised if they are created by hundreds of hours of internet based work by health care professionals, since only they have the professional knowledge required for this task, and are open-source and cost-free to all potential users. 

 

Confidential commercial competition has no place in the creation of the question and all allowable answer options used in the software required for fully functioning electronic analysable patient records. 

 

The most vital open-access part of the EEPD is therefore...   

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