EEPD Volume 3. Datasets
E. Mixed Mother & Baby datasets for every "Birth"
Subsection editor needed
If interested in the possibility of editing this subsection Click here
Discussion Links: None specific so far. Use www.eepd.org.uk
Traditional “Birth” Datasets consist of a confusing mixture of Mother & Baby Data.
See here for scans of such mixed datasets
If a“Cut & Paste” version has been created then Mother Items (e.g. Time of Onset of Labour) have been separated from Baby Items (e.g. Birth Weight)
For Mother Data Items go to http://fawdry.info/index.php?&id=225
For Baby Data Items go to http://fawdry.info/index.php?&id=226
I. Birth Registration/Birth Certificates
The Registration of Births, Deaths and Marriages Regulations (1968)
“These regulations may be cited as the Registration of Births, Deaths and Marriage Regulations 1968 and shall come into operation on 1 April, 1969”
Livebirth Registration Form 309 (1985)
Livebirth Registration / Birth Certificate - Data Required
Application For a Birth Certificate. Form 18 (1986)
Application form for Inclusion on a Doctor’s List (1958)
Statutory Declaration of Acknowledgement of Parentage (1989)
Application for the Re-Registration of the Birth of a Child Born In England or Wales to show the Natural Father’s Details (1988)
Registration of Births (1990)
Registration of Births (1934)
II. Birth Notifications
U.K. Public Health Act 1936 - section regarding Birth Notification (1936)
The computer printout in Stirling is headed “Notification of Birth. Acts 1907, 1915 and 1965” but I have not yet found the Acts to which this heading refers.
U.K. Birth Notification Data Set (2001)
- Scan of Original (Awaiting Scanning)
U.K. Baby Number Project (Mar 2002)
- Scan of Original (Awaiting Scanning)
Canadian Birth Notification / Certification (1999)
As in use in Newfoundland in 1999
VII. Mother and Baby Data - Full Scans of Mixed Original Documents
Confusing dataset recommendation documents, or files, which require both maternal data and neonatal data. A scan of the full version is made accessible here. When an editable version has been created, then it has been split between the “All Mothers” and the “All Neonates” sections below.
West Midlands Perinatal Institute “Maternity Core Data Index” (2004)
- Original but now probably out-dated .pdf file (Awaiting Scanning)
Update needed www.fawdry.info/eepd/03_dat/0_pdfs/UpdateNeed.pdf
Oxford Radcliffe Hospitals (Pending?)
- Scan of Original (Mother & Baby) (Awaiting scanning)
Thames Maternal & Child Health Information Systems Project (1999)
Canadian Perinatal Database - Toronto Consensus (1994)
(Outdated) Dutch Dataset.
Korner Maternity Data Items (1988) - Historical
From “Delivery./Birth Notification, Registration and Clinical Data Sets”
VIII. Potentially Useful Perinatal Dataset Initiatives - Proposed but Never Implemented
For more detail see EEPD. Appendix A. Initiatives.
Revised Korner Proposals (2001)
RCOG working party which petered out without any outcome. Still useful as a minimal paper dataset proposal.
Settatree Korner Revision Proposals (2000)
Contract Dataset Proposals (1996)
IX. “Unusable” Perinatal Dataset Initiatives - “Academic Fantasies”
For more detail see EEPD. Appendix A. Initiatives
When will those with power learn that Andrew Rollerson was so right when he said: “We are trying to run an enormous programme with the techniques that we are familiar with for running small projects. It isn’t working. And it isn’t going to work.” (Andrew Rollerson of Fujitsu-Siemens, 2007)
National Maternity Services Data Development Project - MCDDP (2005 - 2007) (and again 2009 - Current)
In the past this was unfairly often called the “Dunlop Initiative”, since Professor Derek Dunlop, Past President of the RCOG, was asked to chair one of the original expert advisory groups. Despite years of work, this initiative has never produced anything useful for a functioning computer system, being overloaded with redundant definitions concerning data that would be quite impractical to collect electronically.
An attempt is currently under way to revive this project, but I have heard no evidence whatsoever that the renewed initiative has any more contact with reality than the previous academic fantasies!!
This was the initiative which provoked my discussion document entitled “Essential characteristics required for any computer-literate perinatal dataset proposals” with its associated checklist for all future perinatal dataset proposals and also an assessment from a practical point of view of many other perinatal dataset initiatives.
- MS Excel version (In preparation)
- Zipped Excel version (In preparation)
- “Cut & Paste” version (In preparation)
Original 2007 Version
Maternity Care Data Project - Data Dictionary MCDP_DD(1998-2001)
Another expensive and quite useless attempt to apply traditional computer concepts to maternity care.
It assumed that there was an agreed set of maternity data with fixed, well defined names which could be usefully arranged alphabetically!! In consequence, it took my logically and chronologically arranged questions and answers and re-arranged them alphabetically!!
Data Modelling - M.U.M.M.I.E.S. Project (1988-92)
Maternity Users (Medical, Midwifery & Managers) Information and Expert Systems
An expensive failed attempt to apply traditional IT Data-Modelling Techniques to the complexity of Maternity Care.
- Final Report (In Preparation)